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Old 01-Jan-2008, 07:29 PM
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rcgbob44 rcgbob44 is offline
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Mood: My Jota goes rumpety rump! & I have my wife exactly where she wants me!
Kb !

Wot`s happened to KB, not seen her on here for yonks.
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Old 01-Jan-2008, 07:34 PM
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Col996s Col996s is offline
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Mood: Waiting for the warmer weather.
Go to page 2.

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Old 01-Jan-2008, 08:23 PM
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749er 749er is offline
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sorry to read that, I didn't see that thread. hope you get what you need KB.
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Old 01-Jan-2008, 09:18 PM
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DSC Region Organiser Dementor Dementor is offline
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Mood: Dementor hunted by Foggy :)
Missed the thread aswell, hope you had a good Crimbo and a better 2008 Lisa

Hants - Meet Popham Airfield every 2nd Sunday of the Month @ 1pm

Ducati Snells of Alton : >>
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Old 01-Jan-2008, 09:42 PM
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DSC Member nelly nelly is offline
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Mood: Bloo and Yellow.. and Red now ;)
She's much better. She's not 100%, but that never stops her!! Not sure if she's been on here lately, but will let her know you're asking after her.

.....but better in YELLOW, or Bloo and now even RED

www.cornerspeed.co.uk you know you want to
http://www.nolimitstrackdays.com the best trackday organisers in the UK
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Old 01-Jan-2008, 10:11 PM
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Florence Florence is offline
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Gosh! we missed that thread. KB take care sweetie.

Doogalman & Florence

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Old 02-Jan-2008, 12:19 AM
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Jasper Jasper is offline
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Me too.All the best to you.You need some single barrel or Gentleman Jack,non of that cheap stuff!

Last edited by Jasper : 02-Jan-2008 at 09:37 PM.
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Old 02-Jan-2008, 09:42 AM
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chris.p chris.p is offline
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Take care Lisa, all the best for 2008. Don't let them grind you down.

Chris & Cathy.
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Old 02-Jan-2008, 09:49 AM
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Rattler Rattler is offline
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Blimey - missed this too.
Take care Lisa - all the best for 2008.
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Old 02-Jan-2008, 11:07 AM
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DSC Member Jools Jools is offline
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I missed that thread too.

I didn't know that Lisa had Multiple Sclerosis until Mrs Jools was diagnosed with it nearly 2 years ago, but in those last 2 years Lisa has been a real strength to us with her advice, letting us know what sort of things to expect and as a source of great empathy from someone who has more experience in dealing with it.

Not many people know about MS, in fact the majority of people are completely ignorant about it. It's not a 'fashionable' disease for research, it can be a struggle finding a good neurology department with a specialist consultant and, as Lisa points out, a real fight to get the expensive Beta Interferon drugs that are the best thing so far for controlling the disease.

You may not know what Lisa and others are up against, you may be too squeamish. You might not care, or protest that this is a site about Ducatis. If so, read no further. If you are open minded enough to find out more...

MS is a bastid. Nobody knows what truly causes it and it's a degenerative disease with no known cure. It is a disease of the Central Nervous System where the body's own immune system, for some reason, starts to attack the Myelin sheath around the nerves. If you think about the nervous system as your body's wiring and the Myelin sheath as the insulation, once the insulation is damaged the nerves short out and anything downstream of the short will no longer work properly or have a great deal of impairment. The part of the nervous system that gets attacked is completely random, so when an attack is occuring it can affect movement in any part of the body, most commonly it affects the movement of people's limbs, peoples speech, or the function of optic nerves. It affects sufferers in completely individual ways so you never know when an attack is coming and you never know what the severity of the attack is going to be (it can range from 'pins-and needles' and numbness through to partial paralysis).

The attack itself usually lasts between 1-5 days, but once an attack is over the sufferer is left with a damaged nervous system. The Myelin sheath repairs itself but leaves scar tissue (sclerosis) that impairs the flow of nerve signals, so you will get a degree of former nerve function back but you won't know whether that's going to be 99% or 10%. Actually there are usually multiple scars left after each attack (hence Multiple Sclerosis) and since nerve tissue, like brain cells, can't regenerate the degree of impairment that you are left with is a lottery.

Since the body is a wonderful thing, sufferers can work hard at physio and other rehabilitation methods and the body will, to some extent, learn to use other neural networks to obtain near the same body functionality they had before. When in rehab, sufferers have good days and bad days. On good days they can function relatively normally to the point where an onlooker probably wouldn't know anything was wrong, on bad days they suffer from loss of balance, muscle cramps and seizures and chronic fatigue. These two states can flip in an instant, so even if you wake up feeling good and ready to get on with your day that can change at any point - I've lost count of the times I've had to rescue Mrs Jools because she thinks she can beat it by being positive, only to seize up halfway round a supermarket.

Ultimately, the long term prognosis is that each attack leaves damage and hence the degenerative nature of the disease, after a bit the body stops enjoying some remittance from previous attacks and goes into a more progressive form of deterioration.

Most people simply think that MS sufferers with their wobbly balance and slurred speech are just pi55ed.

Sorry to hijack Lisa's thread, I'll get off the soapbox now, but if I've raised even one person's knowledge about a very overlooked disease it'll be worth it. Thanks for 'listening'

The Patent Jools Mood Meter -Today I am:

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