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| #21  17-Mar-2006, 10:19 | ||||
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| Stuck for words Jools, but you'll know what i'd try and say if I could  My thoughts are with you and Sadie. Chin up and stay positive. You know where i am if you think I can help in any way. Neil  |
| #25 17-Mar-2006, 11:30 | ||||
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| Jools, I have never met you but you are right to say that you will not let it rule your lives. I have unfortunatly some idea of what you have been through and will continue to go through. Five years ago my wife aged 25 complained of pain in her knee. She out up with it for a couple of months before going to the doctor and being referred for scans of the right knee. Nothing showed on the knee, however the guy doing the scan saw some shading just on the edge of the scan in the themur. The leg was rescaned and it was bone cancer. We had only been married 3 years and all the things you take for granted about your futures go out the window. At first we were told the leg would have to come off, they could treat it but not always cure it. Anyway a consultant got involved and was pioneering a techinique where they would do a bone transplant from a bone bank (didnt know there were such things) They grafted the middle section of a themur bone after removing the cancered bone tissue from my wifes leg. After that she had 6 months of chemo, lost her hair, lost half her body wait etc. It was scary stuff and upsetting to see. She recovered well until the following year when a routine chest scan showed that a couple of tumors in her right lung. However after an operation to remove the tumors she recovered and again we carried on with life. The following year another scan and this time a couple of tumours in the left lung. The same process was repeated and again some normality returned. Last year we had a new one to overcome. A scan showed the lungs were still clear however strangley we were told it had appeared in her heart. The tumor was not easy to remove and at first no one was prepared to operate and the outlook was bleak. But again a surgeon who was a bit of a maverick said he would like to try and it was a success. Due to chemo we were told we told we wouldnt have children which was not the priority in the circumstances however still upsetting as I had said not yet when we first got married (If I only knew then what I know now). Last December we had a supprise in that her periods suddenly started, she was checked out and it seemed there was a slight chance if the timing was spot on that it could be possible for us to have our own. However thats now not to be as. Well this year guess what it has come back again. This time it is in both lungs. Over the last couple of weeks she has had scans on her liver and brain which I am pleased to say are clear at the moment. Next week she will start 3 months of chemo, follwed by another operation to remaove the hopefully dead cancer tumors. She is 30 this August and I will be honest to say that I have thought at times that she wouldnt make that. You have to stay possitive and carry on as much as possible. We have carried on doing the house up as we would of before however if we want to go out we do and if we want something we get it and not because she might not be here tomorrow but because it makes you look at life in general. Anything could happen to me as I ride my bike, drive my car or just change a light bulb. So if its my time at least I can say I had a good one and did as much as possible. My thoughts are with you. Drop me a u2u anytime for a chat, sometimes you think everything is good in life and then sometimes you have dark times and think its all ********. One thing though, you wont get accused of injuring your wife like I do. When we are on holiday and relaxing around the pool I am usually reading a book on some Racer or another and reading bike mags. You know the sceene, Ducati hat on and all that. People look at my wifes leg which has a huge scar running down it with big staple marks. Look at the scars on her shoulder and chest, look at me me and then when I am having a swim say "were you on the bag of his bike, did he come off tut tut" Cheecky gits. We also get trouble having a disabled badge because she cant possibly be disabled because she is 29, I have had people stop, stare and say "your in a disabled space". "I know "she will say, "Whats wrong with you" they ask. "Well I have had bone cancer, Lung cancer 3 times know, and cancer of the heart and no I dont smoke and no I didnt before either, would you like to see my scars to put your mind at rest". They then scurry off. Its a bit of a laugh when it happens sometimes. We make a lot of jokes about the cancer to keep us sane as well. Like the other day my wife wanted buy a top and I said "dont buy more clothes, if you die its more for me to get rid of" and stuff like "look on the bright side when you have chemo and loose lots of weight me and the cat will have more room in bed" It sounds rude and nasty and I am sure people would think oh my god but it keeps it all real and makes things become talkable. Good Luck to you mate.:  |
| #26 17-Mar-2006, 11:33 | |||
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| #27 17-Mar-2006, 12:07 | ||||
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| #29 17-Mar-2006, 12:40 | ||||
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| Woohoo Joolz...it' only MS!!!!!!!!!! Thank god...could have been much worse!  All soppy sentiments said in my U2U...Now get those stickers on the chair...Find a decent dealer...Get a disabled badge so Sadie can do the designer shopping and park on double yellows outside the shop AND dont forget to Join the Society so she can get her toilet queue jumping card! Oh...and tell her to keep off the chocs whilst on the steroids...dont want that beautiful young ladee looking like ten ton tessy!  Love to you Sadie...Make sure he doesn't bump you too much down those kerbs! Lisa xxx |
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